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Illness representation in patients with multiple sclerosis: A preliminary narrative medicine study
T Paolucci1, M Reho2, C Ciacchella2
1Department of Medical, Oral and Biotechnological Sciences (DSMOB), Physical Medicine and Rehabilitation, G. D'Annunzio University of Chieti-Pescara, Chieti, Italy.
Multiple Sclerosis Journal - Experimental, Translational and Clinical
|September 27, 2024
Summary
Understanding how multiple sclerosis patients view their illness is key. Illness representations link to caregiver support, rehabilitation, fatigue, and impairment, informing personalized care.
Area of Science:
- Neurology
- Psychology
- Rehabilitation Science
Background:
- Personalized interventions for multiple sclerosis (MS) require understanding patient illness representations.
- Patient perspectives on MS are crucial for developing effective coping strategies and treatments.
Purpose of the Study:
- To examine the relationship between MS patients' illness representations and contextual factors.
- To investigate associations between illness representations, fatigue, pain, and neurological impairment in MS patients.
Main Methods:
- Qualitative analysis of interviews from 28 multiple sclerosis patients.
- Automated text analysis identified four distinct illness representations: daily life, meaning-seeking, relational, and coping/growth.
Main Results:
- Relational illness representations correlated with caregiver presence.
- Coping/growth representations were linked to rehabilitation program engagement.
- Daily life representations associated with lower fatigue but higher neurological impairment.
Conclusions:
- Illness representations offer valuable insights for tailoring MS interventions.
- Understanding patient perspectives aids healthcare professionals in designing patient-centered care plans for multiple sclerosis.
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