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Destigmatizing Palliative Care among Young Adults-A Theoretical Intervention Mapping Approach
Yann-Nicolas Batzler1, Manuela Schallenburger1, Jacqueline Schwartz1
1Interdisciplinary Centre for Palliative Medicine, Medical Faculty and University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, 40225 Düsseldorf, Germany.
This study proposes a framework to destigmatize palliative care among young adults through educational interventions in schools and public spaces, aiming to improve end-of-life care discussions and reduce societal taboos surrounding death.
Area of Science:
- Medical Sociology
- Public Health
- Palliative Care Research
Background:
- Palliative care faces significant stigma, often equated with death and dying, hindering timely integration.
- Demographic shifts and rising cancer prevalence necessitate increased focus on palliative care.
- Existing destigmatization efforts primarily target the general public, not specific age groups like young adults.
Purpose of the Study:
- To develop a theoretical framework for an intervention campaign targeting young adults (18-24 years) to destigmatize palliative care.
- To address the gap in interventions focused on younger demographics regarding palliative care perception.
- To lay the groundwork for systematic destigmatization of palliative care among emerging adults.
Main Methods:
- Systematic review of young adults' (18-24 years) perception and knowledge of palliative care.
- Application of the Intervention Mapping approach to design a targeted campaign.
- Identification of effective settings and interventionist roles for reaching the target demographic.
Main Results:
- Young adults can be effectively reached through secondary schools, vocational schools, and universities.
- Interventions should facilitate open discussions about palliative care, death, and dying.
- Environmental changes are needed to increase palliative care presence and reduce taboos surrounding death and dying.
Conclusions:
- Early engagement with palliative care can reduce long-term stigma and address demographic changes.
- A multimodal intervention combining knowledge dissemination, exchange, and media presence is effective.
- Targeting young adults can counter existing stigmatization within their peer groups.
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