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Educating patients about patient-reported outcomes-are we there yet?
Elizabeth Unni1, Maud M van Muilekom2,3,4, Kate Absolom5
1Social, Behavioral, and Administrative Pharmacy, Touro College of Pharmacy, New York, NY, USA. Elizabeth.unni@touro.edu.
Journal of Patient-Reported Outcomes
|September 30, 2024
Summary
Patient education on Patient Reported Outcome Measures (PROMs) is crucial for improving their use in clinical care. More research is needed to evaluate effective patient education strategies for PROMs completion and utility.
Area of Science:
- Health Services Research
- Patient Engagement
- Clinical Informatics
Background:
- Patient Reported Outcome Measures (PROMs) enhance patient-provider communication and improve clinical outcomes.
- Significant advancements have been made in PROM development, implementation, and healthcare provider training for interpretation and treatment modification.
Purpose of the Study:
- To explore patient-centered educational activities for PROMs.
- To identify gaps and pose questions regarding the evaluation of patient education strategies for PROMs.
Main Methods:
- A review of experiences and learning from patient-centered PROMs educational activities.
- Discussion of strategies to improve PROM completion rates by addressing patient understanding.
Main Results:
- Lack of patient understanding of PROM significance and utility is a barrier to completion.
- Educating patients on PROMs is recommended, but evidence on specific training methods is limited.
Conclusions:
- Symposium highlighted diverse patient-centered PROMs educational activities across the Netherlands, Canada, and the UK.
- Further investigation into effective patient education strategies and their evaluation is warranted for optimal PROM utilization in clinical care.
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