Development of MyREADY Transition BBD Mobile App, a Health Intervention Technology Platform, to Improve Care...

Area of Science:

• Health Information Technology (HIT)
• Pediatric to Adult Healthcare Transition
• Patient-Centered Interventions

Background:

• Transitioning from pediatric to adult healthcare is complex and resource-intensive.
• Patient-centered health information technology (HIT) interventions are increasingly developed with patient input.
• Brain-based disabilities present unique challenges during healthcare transitions.

Purpose of the Study:

• To develop an internet-based mobile application intervention for patients with brain-based disabilities.
• To improve transition in care readiness for adolescents and young adults.
• To create a patient-centered health information technology (HIT) platform.

Main Methods:

• Designed a mobile app for patients aged 15-17 with brain-based disabilities.
• Assembled a multidisciplinary team, industry partner, and patient/family advisory council.
• Utilized cognitive learning theory and agile iterative methodology for development.

Main Results:

• Developed the MyREADY Transition HIT platform, featuring an electronic mentor with educational content and gamified navigation.
• Personalization was achieved through patient and family advisory council input.
• Development took 24 months, exceeding the initial 12-month grant period, impacting trial timelines and budget.

Conclusions:

• Successfully developed a novel, patient-centered HIT platform for healthcare transition in partnership with patients and industry.
• Highlights the need for careful resource management and planning for timely HIT tool delivery for clinical trials.
• Emphasizes the importance of patient-centered design in developing effective health technology solutions.