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Updated: May 2, 2026
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The Social Dimension of Stress: Experimental Manipulations of Social Support and Social Identity in the Trier Social Stress Test
Published on: November 19, 2015
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Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change: Reflections on Research and
Mark Loughhead1, Ellie Hodges2, Heather McIntyre1
1Mental Health and Suicide Prevention Research and Education Group, University of South Australia, Adelaide, South Australia, Australia.
Summary
The Activating Lived Experience Leadership project fostered genuine partnerships to improve mental health systems. Co-designed research identified eight action areas for transformative change, valuing lived experience leadership.
Area of Science:
- Mental Health Research
- Social Sector Systems
- Participatory Action Research
Background:
- The Activating Lived Experience Leadership (ALEL) project in South Australia (2019-2021) focused on integrating lived experience within mental health and social sectors.
- Engaged 182 participants to generate community action and research knowledge for systems improvement.
Purpose of the Study:
- To build collective partnerships between lived experience leaders and sector leaders for systems-level impact.
- To identify key action areas and strategies for transformative systems change through collaborative research.
- To enhance the recognition, valuation, and integration of lived experience in mental health and social services.
Main Methods:
- Employed participatory action research (PAR) with diverse lived experience and sector leaders.
- Utilized qualitative research methods including focus groups, surveys, and interviews.
- Incorporated community development activities such as summits, consultations, and training.
Main Results:
- Generated detailed findings on the complexities of lived experience leadership.
- Identified collective strategies for systems to better support and leverage lived experience perspectives.
- Defined eight key action areas for transformational systems change in South Australia.
Conclusions:
- Collective efforts in research and sector development are crucial for embedding lived experience leadership.
- Findings provide guidance for genuine collaboration to transform mental health and social sector systems.
- Co-design and governance by lived experience communities are vital for impactful project outcomes.
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