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Understanding Pediatric Experiences With Symptomatic Varicoceles: Mixed Methods Study of an Online Varicocele
Grace E Sollender1, Tommy Jiang1,2, Ilana Finkelshtein1
1Department of Urology, University of California, Los Angeles, Los Angeles, CA, United States.
Adolescent males discuss varicocele concerns like pain and aesthetics on social media, seeking peer support alongside medical advice. This highlights the need for physicians to understand these unique patient priorities for better counseling.
Area of Science:
- Urology
- Adolescent Medicine
- Social Media Analysis
Background:
- Varicoceles affect up to 30% of postpubertal adolescent males, a demographic difficult to study due to sensitivity.
- Social media platforms offer a unique avenue to understand adolescent perceptions of varicoceles.
Purpose of the Study:
- To identify adolescent males' perceptions and concerns regarding varicoceles using social media data.
- To inform healthcare providers on better evaluation and counseling strategies for this population.
Main Methods:
- A mixed-methods approach combining quantitative natural language processing (NLP) and qualitative thematic analysis.
- Analysis of 1103 posts from the Reddit community 'r/varicocele' (age ≤21 years).
- Utilized Meaning Extraction Method with Principal Component Analysis (MEM/PCA) and constant comparative method.
Main Results:
- Key themes included varicocele overview, management, postprocedural experiences, and seeking community support.
- Adolescents expressed concerns about hypogonadism and semen analysis.
- Symptomatic varicoceles were common, with pain, hypogonadism symptoms, and aesthetics being primary concerns.
Conclusions:
- Adolescents use social media for peer support and as an adjunct to medical consultations.
- Symptom control, focusing on pain, aesthetics, sexual function, and hypogonadism, is a priority for adolescents.
- Findings can guide urologists in counseling and understanding decision-making for varicocele management.
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