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Clean intermittent catheterisation determinants and caregiver adherence in paediatric patients with spinal dysraphism

Azadeh Wickham1,2, Cynthia L Russell2,3, John M Gatti4

  • 1Surgery/Urology, Children's Mercy Kansas City, Kansas City, Missouri, USA apwickham@cmh.edu.

BMJ Open
|October 14, 2024
PubMed

Insights

Caregiver adherence to clean intermittent catheterization (CIC) for children with neurogenic bladder is suboptimal. Understanding caregiver experiences and determinants is crucial for improving adherence and preventing complications like UTIs.

Area of Science:

  • Pediatric Urology
  • Neuroscience
  • Caregiver Support

Background:

  • Clean intermittent catheterization (CIC) is standard for neurogenic lower urinary tract dysfunction (NLUTD) in children with spinal dysraphism (SD) and spinal cord injury (SCI).
  • Suboptimal adherence to CIC (18%-66%) leads to urinary tract infections, incontinence, and renal insufficiency.
  • Limited research exists on CIC adherence, particularly from the caregiver perspective.

Purpose of the Study:

  • To identify caregiver adherence rates to CIC for children with NLUTD due to SD and SCI.
  • To explore determinants influencing caregiver adherence to CIC.
  • To understand the personal experiences of caregivers performing CIC.

Main Methods:

  • A cross-sectional, correlational, convergent mixed-methods study.
  • 60 adult caregivers of children with SD/SCI on CIC were recruited via convenience sampling.
  • Quantitative data (adherence, determinants) and qualitative data (interviews) were collected simultaneously.

Main Results:

  • Adherence data reported as frequencies and percentages.
  • Correlation analysis to assess the association between caregiver determinants and adherence levels.
  • Thematic analysis of interview data to interpret caregiver experiences.

Conclusions:

  • Findings will inform strategies to improve CIC adherence in pediatric patients with NLUTD.
  • Dissemination to participants, publication in peer-reviewed journals, and conference presentations are planned.
  • This study addresses a critical gap in understanding caregiver roles in pediatric CIC management.
Abstract

Keywords:
caregiverspaediatric urologystatistics & research methods

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