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Feasibility of a complex psychosocial intervention for families with parental cancer: acceptability, suitability,
Nicole Ernstmann1,2,3, Hannah Nakata4,5, Lina Heier6,4,5,7,8
1Chair of Health Services Research, Institute of Medical Sociology, Health Services Research and Rehabilitation Science, Faculty of Medicine and University Hospital Cologne, University of Cologne, Eupener Str. 129, 50933, Cologne, Germany. nicole.ernstmann1@uk-koeln.de.
Purpose:
This study aimed to assess the feasibility of a comprehensive psychosocial intervention for families coping with parental cancer.
Methods:
A quasi-experimental trial with intervention and control group, employing a mixed-methods approach, was conducted. A total of 472 families affected by parental cancer participated. The feasibility of the intervention was evaluated based on study monitoring measures (on-site visits, team supervision meeting observations, case conference observations, best practice workshops, coordinating information exchange between intervention sites, and reviewing intervention documentation), process evaluation (semi-structured interviews, focus group discussion) and survey data. Data analysis involved thematic coding and descriptive statistics.
Results:
The intervention was well-received by the participating families, with a high degree of acceptance observed. The feasibility of the intervention was found to be associated with specific dynamics within each family system and the motivation of the family members. The success of the intervention was described as dependent on the family-centered arrangement of the encounters, including factors such as frequency, duration, and mode, which greatly influenced its overall acceptability.
Conclusion:
The family-scout intervention demonstrates its feasibility as an effective intervention to reduce the burden experienced by families coping with parental cancer. Psychosocial oncology services should continue to develop and implement family-centered interventions to offer support to families during their cancer journey.
Trial Registration:
ClinicalTrials.gov, NCT04186923. Retrospectively registered on 4 December 2019.
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