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Challenging Case: Family Navigation for Autism Spectrum Disorder
Ingrid Y Lin1, Aubyn C Stahmer2, Emily Feinberg3
1Division of Developmental-Behavioral Pediatrics, Department of Pediatrics, School of Medicine, Stanford University, Stanford, CA.
Journal of Developmental and Behavioral Pediatrics : JDBP
|October 24, 2024
Summary
A 28-month-old boy diagnosed with autism spectrum disorder (ASD) faced challenges accessing early intervention services due to communication barriers and unaddressed needs. Further support is crucial for this Spanish-speaking family to navigate services for their child
Area of Science:
- Developmental-Behavioral Pediatrics
- Autism Spectrum Disorder (ASD) Diagnosis
- Early Intervention Services
Background:
- A 28-month-old Spanish-speaking boy presented with developmental concerns, including language regression and repetitive behaviors, leading to positive screening for autism.
- Family history indicated parental migration and farm work, potentially impacting access to consistent developmental support.
- Previous attempts by early intervention programs were unsuccessful, highlighting potential barriers in communication and service engagement.
Purpose of the Study:
- To detail the diagnostic process and challenges encountered in a case of autism spectrum disorder in a young child from a linguistically diverse background.
- To explore the barriers to accessing early intervention and therapeutic services for families facing socioeconomic and communication challenges.
- To outline a critical juncture in a child's developmental journey, emphasizing the need for tailored support and follow-up.
Main Methods:
- Clinical assessment in a developmental-behavioral pediatrics (DBP) clinic.
- Utilized the Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F) for screening.
- Conducted developmental testing, behavioral observations, and reviewed parental concerns.
Main Results:
- Developmental testing revealed extremely low receptive and expressive language skills with significant cognitive and adaptive scatter.
- Behavioral observations confirmed social communication differences, repetitive behaviors, and distress with transitions, consistent with autism spectrum disorder.
- Despite diagnosis and recommendations for early intervention, applied behavior analysis, speech therapy, audiology, and genetic testing, no services were initiated within six months.
Conclusions:
- The case highlights significant delays in accessing critical early intervention services for a child with autism spectrum disorder, compounded by language and potential socioeconomic factors.
- Effective navigation of healthcare and early intervention systems is essential for families from diverse backgrounds.
- The critical need for persistent follow-up and culturally sensitive support is underscored to ensure children receive timely and appropriate developmental services.
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