Related Experiment Video

Updated: Jun 9, 2025

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure
15:18

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure

Published on: July 30, 2009

18.1K

Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review

Alan P Cooper1,2, Linda Nguyen3,4,5, Oluwapolola Irelewuyi1,2,6

  • 1Department of Paediatrics, The Hospital for Sick Children, Toronto, ON M5G 1X8, Canada.

Children (Basel, Switzerland)
|October 26, 2024
PubMed

Insights

Patient-oriented research (POR) involves partnering with patients to improve pediatric health studies. This review offers guidance on conducting POR, highlighting its feasibility and benefits for overcoming common challenges.

Area of Science:

  • Health Services Research
  • Pediatric Research
  • Community-Based Participatory Research

Background:

  • Patient-oriented research (POR) is increasingly adopted in adult and pediatric health research.
  • This model integrates patients as partners throughout the research process.
  • Conducting POR in pediatric populations presents unique considerations.

Purpose of the Study:

  • To provide guidance on implementing patient-oriented research (POR) in pediatric populations.
  • To outline strategies for patient engagement across the entire research cycle.
  • To address challenges and demonstrate the benefits of POR in pediatric health.

Main Methods:

  • Literature review of existing patient-oriented research in pediatric health.
  • Description of engagement strategies before and during research projects.
  • Discussion of measurement and evaluation approaches for POR.

Main Results:

  • Patient-oriented research is feasible and beneficial in pediatric settings.
  • Preparation and specific tools can overcome common challenges in POR.
  • Examples from literature illustrate successful implementation of POR.

Conclusions:

  • Patient-oriented research is a valuable approach for pediatric health research.
  • Effective engagement strategies are crucial for successful POR implementation.
  • POR can lead to more relevant and impactful research outcomes for children.

Keywords:
Canadian Institutes of Health Research (CIHR) pediatric researchand childhood disability researchdiversity and inclusion in researchpatient and public involvementpatient-oriented researchpatient-partnerperson with lived experienceresearch engagement

More Related Videos

Whole-body PET/MRI of Pediatric Patients: The Details That Matter10:02

Whole-body PET/MRI of Pediatric Patients: The Details That Matter

Published on: December 19, 2017

14.5K
A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting14:43

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

11.7K

Related Concept Videos

Longitudinal Research02:20

Longitudinal Research

Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
11.9K
Longitudinal Studies01:26

Longitudinal Studies

Longitudinal studies are also widely used in other medical and social science fields. For instance, in cardiovascular research, they can monitor patients' health over decades to identify risk factors for heart disease, such as high cholesterol or smoking, and evaluate the long-term effectiveness of preventive measures. Similarly, in mental health studies, researchers might follow individuals from adolescence into adulthood to understand the development and progression of conditions like...
139
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
Ethics in Research01:56

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
22.9K