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Using a Patient-Reported Outcome Measure to Assess Physical, Psychosocial, and Existential Issues in COPD.

Henriette Darum Sørensen1,2, Cecilie Lindström Egholm1,2, Anders Løkke3,4

  • 1REHPA, the Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, 5800 Nyborg, Denmark.

Journal of Clinical Medicine
|October 26, 2024
PubMed
Summary

Chronic obstructive pulmonary disease (COPD) patients experience physical, psychosocial, and existential issues. The PRO-Pall tool effectively identifies these diverse needs in clinical settings.

Keywords:
chronic obstructive pulmonary diseasegeneral palliative careneeds assessmentpatient-reported outcomes

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Area of Science:

  • Palliative Care
  • Pulmonology
  • Psychosocial Oncology

Background:

  • Chronic obstructive pulmonary disease (COPD) significantly impacts patients' physical health, quality of life, and psychological well-being.
  • Clinical identification of psychosocial and existential issues in COPD patients often lags behind physical symptom assessment.

Purpose of the Study:

  • To assess physical, psychosocial, and existential issues in COPD patients using the PRO-Pall patient-reported outcome measure.
  • To evaluate the utility of the PRO-Pall in a Danish outpatient clinic setting for comprehensive patient assessment.

Main Methods:

  • A cohort of 115 adult COPD patients completed the PRO-Pall measure, either electronically or in-clinic.
  • Sociodemographic and illness-related data were collected from electronic health records.
  • The PRO-Pall assesses physical, psychosocial, and existential dimensions of patient experience.

Main Results:

  • Predominant physical issues included shortness of breath, tiredness, and difficulty walking.
  • Worry about social role changes was the most common psychosocial issue; existential issues were reported by ~10% of patients.
  • Females reported a greater need for rest, while males reported more intimacy issues. Higher COPD impact correlated with lower quality of life ratings.

Conclusions:

  • COPD patients report a range of issues across physical, psychosocial, and existential domains.
  • The PRO-Pall measure demonstrates potential as a comprehensive tool for assessing COPD patients' holistic needs.
  • This tool offers a broader alternative to measures focusing solely on physical symptoms, facilitating more complete patient care.