Rehabilitation is [still] necessary to optimize function in neuromuscular disorders

Area of Science:

• Neurology
• Rehabilitation Medicine

Background:

• The availability of novel disease-modifying treatments (DMTs) is transforming care for individuals with neuromuscular disorders (NMDs).
• While DMTs offer significant promise, they are not currently curative, and patients continue to experience impairments and disability.
• There is a growing population of individuals with NMDs aging into adulthood, presenting unique care challenges.

Purpose of the Study:

• To underscore the continued importance of rehabilitation in the management of NMDs.
• To advocate for an interdisciplinary rehabilitation approach to complement DMTs.
• To address the evolving needs of aging individuals with NMDs.

Main Methods:

• Review of current rehabilitation practices for NMDs.
• Analysis of the role of interdisciplinary care in addressing functional needs, pain, and equipment requirements.
• Consideration of workforce and service delivery innovations for aging NMD populations.

Main Results:

• Rehabilitation is vital for managing functional impairments and complications in NMD patients, even those receiving DMTs.
• An interdisciplinary approach provides comprehensive care, addressing physical, functional, and equipment needs.
• The increasing lifespan of individuals with NMDs necessitates a reevaluation of rehabilitation services and workforce capacity.

Conclusions:

• Rehabilitation must remain a cornerstone of NMD care alongside emerging DMTs.
• Innovative and interdisciplinary rehabilitation strategies are needed to optimize outcomes and support the growing aging NMD population.
• Healthcare systems must prepare for the expanding cohort of adults with NMDs through workforce development and service adaptation.