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Person-first and identity-first disability language: Informing client centred care
Lisa B Grech1, Donna Koller2, Amanda Olley3
1School of Psychology, Deakin University, Victoria, Australia; Department of Psychology, Charles Sturt University, New South Wales, Australia; Department of Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, Australia.
Social Science & Medicine (1982)
|October 28, 2024
Summary
Disability language preference, whether person-first or identity-first, varies significantly by health condition, age, and gender identity. Understanding these nuances is crucial for respectful communication regarding disability.
Area of Science:
- Sociolinguistics
- Disability Studies
- Health Communication
Background:
- Debate exists regarding person-first vs. identity-first language for individuals with disabilities.
- Limited evidence informs preferences across diverse health conditions and demographics.
Purpose of the Study:
- To investigate the preferences for person-first and identity-first language among individuals with self-reported health conditions.
- To identify factors influencing these language preferences, including health condition, demographics, and implicit/explicit biases.
Main Methods:
- A 42-item survey was administered to individuals with self-reported health conditions.
- Recruitment utilized social media and community support organizations.
- Data collected on demographic factors, health conditions, and language preferences.
Main Results:
- 875 valid surveys were analyzed, with participants most frequently using identity-first language for themselves (42.2%).
- Preferences varied by health condition; neurodevelopmental conditions favored identity-first, while digestive conditions favored person-first.
- Younger and non-binary participants preferred identity-first language.
Conclusions:
- Disability language preferences are nuanced and influenced by individual health conditions and demographics.
- Respectful communication requires a deeper understanding of these varied preferences.
- Context matters, with appropriate language use differing for in-group vs. out-group communication.
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