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Related Experiment Video

Updated: Jun 8, 2025

Comprehensive & Cost Effective Laboratory Monitoring of HIV/AIDS: an African Role Model
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Unlocking Success: Community Engagement for Enhanced HIV Care Outcomes.

Sarah E Wiehe1, Tammie L Nelson1, Bridget Hawryluk2

  • 1Division of Children's Health Services Research, Department of Pediatrics, Indiana University School of Medicine.

Research Square
|November 1, 2024
PubMed
Summary
This summary is machine-generated.

Community engagement and human-centered design are vital for understanding the HIV care continuum. This approach ensures research on social determinants of health for people with HIV (PLWH) is relevant and impactful.

Keywords:
HIVcommunity engagementdesign thinkinghuman-centered designpatient engagementstakeholder engagement

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Area of Science:

  • Public Health
  • Health Equity
  • Social Determinants of Health

Background:

  • Focus on non-clinical factors influencing the HIV care continuum for people living with HIV (PLWH).
  • Investigating the impact of residential mobility and social service connections on HIV care.
  • Emphasizing community and stakeholder involvement in research design.

Purpose of the Study:

  • To generate stakeholder-informed, research-based interventions for PLWH.
  • To share an effective community engagement approach for health research.
  • To improve understanding of non-clinical correlates of HIV care continuity.

Main Methods:

  • Partnered with Indiana CTSI's Research Jam for human-centered design.
  • Recruited a stakeholder panel including PLWH, clinicians, and social service providers.
  • Conducted six engagement sessions using human-centered design tools.

Main Results:

  • Engaged 48 individuals, with 35 actively participating in sessions.
  • Stakeholder panel guided analyses, identified data gaps, and interpreted results.
  • Panel provided feedback on interventions and co-presented findings.

Conclusions:

  • Community engagement, enhanced by human-centered design, adds value to research.
  • Human-centered design fosters empathy, trust, and meaningful stakeholder collaboration.
  • These methods are crucial for relevant, impactful, and sustainable public health research.