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  6. Mothers' Perspectives On The Use And Acceptability Of 3d Printed Prosthesis By Their Children With Congenital Upper Limb Difference In India: A Qualitative Study

Mothers' perspectives on the use and acceptability of 3d printed prosthesis by their children with congenital upper limb difference in India: a qualitative study

Oksana Yakova Dimintiyanova1, Agnes Meershoek1,2, Nicolai Henri de Kuyper1

  • 1Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.

Disability and Rehabilitation
|November 1, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

3D printed prosthetic devices (3DPP) offer a low-cost solution for children with congenital upper limb differences in India. However, mothers reported challenges with functionality, pain, and social stigma, impacting device acceptance and continued use.

Area of Science:

  • Biomedical Engineering
  • Rehabilitation Science
  • Pediatric Orthopedics

Background:

  • Children with congenital upper limb difference (CULD) in India face limited access to conventional prostheses.
  • 3D printed prosthetic devices (3DPP) present a customizable, low-cost alternative for pediatric CULD management.
  • Understanding the functional outcomes, access, and acceptability of 3DPP in Indian clinical settings is crucial.

Purpose of the Study:

  • To explore Indian mothers' perspectives on the acceptability of 3D printed prosthetic devices (3DPP) for their children with CULD.
  • To investigate how children with CULD utilized 3DPP in their daily lives.
  • To identify factors influencing the adoption and abandonment of 3DPP.

Main Methods:

  • Qualitative study involving semi-structured interviews with seven mothers of children (aged 3-11) with CULD.
Keywords:
3D printingcongenital upper extremity differenceshealthcare disparitieslimb prosthesis

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  • Children had been fitted with a 3DPP for at least one month.
  • Inductive thematic analysis of interview data to identify key themes.
  • Main Results:

    • Four major themes emerged: 3DPP design and functionality, adaptation patterns, social attitudes, and access to care.
    • Mothers reported prosthesis abandonment due to functional limitations, pain, and unmet expectations.
    • Moderate family acceptance contrasted with social stigmatization, posing a barrier to sustained use.

    Conclusions:

    • Early-stage use of 3DPP in India reveals moderate acceptability but significant challenges.
    • Addressing functional limitations, pain, and social stigma is essential for successful 3DPP adaptation.
    • Tailored solutions are needed to improve the long-term success of 3DPP for children with CULD.
    maternal perspectives
    qualitative research
    social stigmas