Collection of Patient-Reported Outcome Measures in Rural and Underserved Populations
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Summary
This summary is machine-generated.Collecting patient-reported outcome measures (PROMs) from underserved populations requires hybrid strategies. Combining digital tools with high-touch methods and text messaging improves response rates for greater health equity.
Area Of Science
- Clinical Trials
- Health Disparities
- Patient-Reported Outcomes
Background
- NIH Pragmatic Trials Collaboratory involves 31 trials using patient-reported outcome measures (PROMs).
- Trials often enroll medically underserved populations, including low-income, minority, and rural communities.
- Collecting unbiased PROM data is crucial for generalizability and addressing health inequities.
Purpose Of The Study
- To share lessons learned in collecting PROMs from underserved populations.
- To highlight challenges with digital PROM administration in disparity-prone groups.
- To improve PROM data completeness and representativeness in clinical trials.
Main Methods
- Tested various strategies to enhance PROM response rates.
- Focused on approaches for disparity-prone and underserved patient groups.
- Described implemented strategies and targeted populations in trial case reports.
Main Results
- Digital PROM administration (EHRs, web interfaces) shows low engagement in some populations.
- Barriers include lower digital proficiency, limited device access, and reduced EHR portal uptake.
- Optimized PROM collection necessitates a multifaceted approach.
Conclusions
- Hybrid approaches combining multiple outreach modes are essential.
- High-touch methods and creative digital engagement strategies are key.
- Multimodal participant engagement and text messaging improve PROM collection in diverse populations.