Embracing Complexity Within Creative Approaches to Dementia Research: Ethics, Reflexivity, and Research Practices

Area of Science:

• Gerontology
• Qualitative Research Methods
• Dementia Studies

Background:

• Creative qualitative research is increasingly used in dementia studies.
• These methods facilitate expression and meaningful participation for individuals with dementia.
• Creative approaches illuminate lived experiences and nuanced understandings of engagement.

Purpose of the Study:

• To reflect on the use of creative and sensory approaches in qualitative dementia research.
• To examine the complexities and ethical considerations of creative research with people living with dementia.
• To highlight the central role of people with dementia in the research process.

Main Methods:

• Reflective analysis of three doctoral research studies.
• Application of creative and sensory qualitative research techniques.
• Focus on researcher roles and ethical practices in creative dementia research.

Main Results:

• Creative approaches require careful planning, extended timelines, and interdisciplinary teams.
• The researcher's role is critical in ensuring authentic representation of participants' voices.
• Ethical practices in creative research demand specific attention and thoughtful navigation.

Conclusions:

• Creative methods offer significant opportunities for future dementia research.
• Embracing creative approaches can lead to more authentic and nuanced understandings of dementia.
• Further exploration of ethical frameworks for creative dementia research is warranted.