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Decrease in Primary Caregivers' Quality of Life During the Care of a Relative with Palliative Care Needs: A
Rodica Sorina Pop1,2,3, Bianca Olivia Cojan Minzat1,2, Cristina Paula Ursu1,4,5
1Department Family Medicine, Faculty of Medicine, University of Medicine and Pharmacy "Iuliu Hatieganu", 400337 Cluj Napoca, Romania.
Cancers
|November 9, 2024
Summary
Caregiver quality of life significantly declines during palliative care, impacting physical, emotional, and social well-being. This study highlights the need for support for family caregivers facing numerous responsibilities.
Area of Science:
- Palliative Care
- Caregiver Well-being
- Quality of Life Research
Background:
- Quality of life (QOL) is multifaceted, influenced by personal, social, and health factors.
- Assessing caregiver QOL is crucial as it impacts patient care and caregiver health.
- Caregiver burden is a significant issue in palliative care settings.
Purpose of the Study:
- To investigate changes in the quality of life of primary caregivers during palliative patient care.
- To identify specific aspects of QOL affected by the caregiving role.
- To understand the impact of caregiving on the caregiver's health and functioning.
Main Methods:
- Prospective longitudinal study design.
- Inclusion of 140 primary caregivers for palliative patients.
- Utilized the Medical Outcomes Scale-Short Form 36 (MOS-SF36) to assess QOL.
Main Results:
- Caregivers of non-malignant patients reported decreased QOL in emotional role limitations, social functioning, energy, and general health perception.
- Caregivers of cancer patients experienced limitations in daily roles due to physical health, emotional problems, and social functioning.
- Nearly 90% of caregivers were family members, with over two-thirds being women.
Conclusions:
- Caregiver burden, stemming from extensive responsibilities and time commitment, negatively impacts QOL.
- Significant declines in physical, psycho-emotional, and social aspects of QOL are observed in caregivers.
- Caregivers perceive a general deterioration of their health status due to the demands of palliative care.
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