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  11. Multilevel Facilitators And Barriers To Healthcare Organization And Delivery Among Childhood Cancer Survivors

Multilevel Facilitators and Barriers to Healthcare Organization and Delivery Among Childhood Cancer Survivors

Brianna M Miller1,2, Mary Rose Yockel2, Burton E Appel3

  • 1Department of Human Science, School of Health, Georgetown University, Washington, District of Columbia, USA.

Pediatric Blood & Cancer
|November 12, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Childhood cancer survivors (CCS) face barriers to annual follow-ups, including healthcare system issues and social determinants. Improving care transitions and psychosocial support can enhance adherence for these cancer survivors.

Area of Science:

  • Oncology
  • Healthcare Management
  • Public Health

Background:

  • Childhood cancer survivors (CCS) require lifelong follow-up due to late effects.
  • Suboptimal adherence to recommended annual follow-ups poses a significant risk.
  • Healthcare organization and delivery significantly impact CCS follow-up rates.

Purpose of the Study:

  • To explore expert perceptions on facilitators and barriers to healthcare organization and delivery for CCS.
  • To identify system-level factors influencing annual follow-up adherence among CCS.

Main Methods:

  • Interviews with 31 clinicians and administrators at a comprehensive cancer center.
  • Inductive analysis of interview transcripts using a study-specific coding scheme.
  • Examination of system-level factors affecting CCS follow-up.
Keywords:
childhood cancer survivorsfollow‐up adherenceguidelinessurvivorship care

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Main Results:

  • Healthcare system influences (59%) were the most prominent theme affecting follow-up.
  • Social determinants of health (25%) and intra/interpersonal factors (16%) also played key roles.
  • Key barriers included care transitions, limited psychosocial support, and transportation challenges, particularly in low-resource settings.

Conclusions:

  • Healthcare system design is crucial for CCS follow-up adherence.
  • Facilitating transitions in care responsibility and addressing social determinants of health are vital.
  • Comprehensive psychosocial support and staff awareness of patient barriers are essential for improving survivorship care.