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Medical complications and advance medical decision-making in the minimally conscious state
Berno U H Overbeek1,2,3, Willemijn S van Erp1,4,5, Henk J Eilander1
1Department of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, The Netherlands.
Objectives:
Medical complications occur frequently in MCS and influence advance medical decision-making. This study aimed to report on medical complications and advance medical decision-making in a nationwide group of MCS patients.
Methods:
In this descriptive cross-sectional study, clinical and advance medical decision-making characteristics were collected in a survey, completed by the treating physician.
Results:
The MCS population consisted of 32 patients: 65.6% traumatic etiology, 68.8% male. Patients had a median of five complications: hypertonia/spasticity (81.3%) and pneumonia (50.0%) occurred most frequently. Most patients had curative goals: three patients had a fully curative treatment scenarios, 29 a curative scenario with ≥ 1 treatment restrictions, two a palliative and two a symptomatic scenario. Conversations about advance medical decision-making were complicated by disputes with next of kin, inability to evaluate medical treatment because of medical instability, next of kin not being ready to discuss medical treatment, or a treatment scenario explicitly based on requests of next of kin.
Conclusion:
Medical complications are common in MCS patients and advance medical decision making was complicated. This legitimates realization of specialized care across acute, post-acute and long-term care. Further longitudinal research into advance medical decision-making is recommended.
Insights
Medical complications are common in Mechanical Circulatory Support (MCS) patients, frequently complicating advance care planning. This highlights the need for specialized care and further research into decision-making processes for these patients.
Area of Science:
- Medical complications in Mechanical Circulatory Support (MCS).
- Advance medical decision-making in complex patient populations.
Background:
- Medical complications are prevalent in patients requiring Mechanical Circulatory Support (MCS).
- These complications significantly impact advance medical decision-making processes.
Purpose of the Study:
- To investigate the types and frequency of medical complications in a nationwide cohort of MCS patients.
- To analyze the challenges and characteristics of advance medical decision-making in this population.
Main Methods:
- A descriptive, cross-sectional study design was employed.
- Data were collected via surveys completed by treating physicians, capturing clinical and advance medical decision-making information.
Main Results:
- The study included 32 MCS patients, with traumatic etiology and male gender being common.
- Patients experienced a median of five complications, most frequently hypertonia/spasticity and pneumonia.
- Advance care planning discussions were often complicated by family disputes, patient instability, or family-driven treatment requests.
Conclusions:
- Frequent medical complications in MCS patients complicate advance medical decision-making.
- This underscores the necessity for integrated, specialized care across all care settings.
- Longitudinal research on advance medical decision-making in MCS patients is recommended.
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