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Community-dwelling Black Women's Experiences With Urinary Incontinence: A Qualitative Study.

Gnankang Sarah Napoé1, Courtney Judkins2, Flor de Abril Cameron3

  • 1University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania; Department of Obstetrics, Gynecology and Reproductive Sciences, UPMC Magee-Womens Hospital, Pittsburgh, Pennsylvania; Division of Urogynecology and Reconstructive Pelvic Surgery, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania; Magee-Womens Research Institute, Pittsburgh, Pennsylvania.

Women'S Health Issues : Official Publication of the Jacobs Institute of Women'S Health
|November 19, 2024
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Summary

Black women face challenges seeking urinary incontinence (UI) care, including healthcare system trauma and symptom dismissal. Improved screening, education, and trust-building are crucial for better care experiences.

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Area of Science:

  • Urology
  • Women's Health
  • Health Services Research

Background:

  • Urinary incontinence (UI) significantly impacts quality of life.
  • Understanding the specific challenges Black women face in seeking UI care is essential for improving health equity.

Purpose of the Study:

  • To explore the experiences, concerns, decisions, and challenges Black women encounter when seeking care for urinary incontinence (UI).

Main Methods:

  • Semistructured interviews were conducted with 24 self-identified Black women experiencing UI symptoms.
  • Interviews explored UI experiences, quality of life impact, care-seeking behaviors, and barriers to care.
  • Transcribed interviews were analyzed using thematic analysis to identify patterns and themes.

Main Results:

  • Five themes emerged: negative emotions and adaptations to UI, normalization of symptoms reducing care seeking, clinician minimization of symptoms, desire for routine screening and education, and need for diversity and quality care to build trust.
  • Participants reported that UI symptoms led to negative emotions and required personal adaptations.
  • Clinicians often minimized or dismissed participants' UI and other medical symptoms, impacting care-seeking.

Conclusions:

  • Barriers to UI care for Black women include embarrassment and past negative healthcare experiences.
  • Routine screening, enhanced patient education, and building provider trust are recommended to improve care access and experiences for Black women with UI.