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American College of Medical Genetics and Genomics ACT Sheets Are a Vital Resource for State Newborn Screening
Virginia Sack1, Sara Etienne2, Grace Beal1
1Newborn Screening Program, David Axelrod Institute, Wadsworth Center, New York State Department of Health, Albany, NY 12208, USA.
Abstract:
The American College of Medical Genetics and Genomics (ACMG) and the National Coordinating Center for the Regional Genetics Networks (NCC)-developed ACT sheets are a vital resource for state newborn screening (NBS) programs. They allow NBS programs to be able to provide up-to-date, just-in-time disorder information to primary care providers (PCPs). Their continued availability is necessary to ensure that all babies identified by newborn screening receive appropriate evaluation and care.
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