Public Health Data Exchange Through Health Information Exchange Organizations: National Survey Study
Sarah Rosenthal1, Julia Adler-Milstein1, Vaishali Patel2
1Division of Clinical Informatics and Digital Transformation, University of California, San Francisco, San Francisco, CA, United States.
JMIR Public Health and Surveillance
|November 26, 2024
Summary
Health Information Organizations (HIOs) are increasingly supporting public health agencies (PHAs) by sharing data to address information gaps. This study surveyed HIOs to assess their connectivity and capabilities in enhancing public health surveillance.
Area of Science:
- Public Health Informatics
- Health Data Exchange
- Health Information Organizations
Background:
- The COVID-19 pandemic highlighted critical deficiencies in public health agencies' (PHAs) data infrastructure, hindering disease surveillance, especially for minority populations.
- Health Information Organizations (HIOs) offer a potential solution by facilitating cross-organizational health data sharing.
Purpose of the Study:
- To survey operational Health Information Organizations (HIOs) across the United States.
- To assess HIO connectivity with PHAs and their capacity for public health data exchange.
Main Methods:
- A census of 135 potential HIOs operational as of March 1, 2022, was identified.
- A survey was administered to 90 HIOs, with 77 (86% response rate) completing it to gather data on demographics, PHA connectivity, and services.
Main Results:
- 86% of surveyed HIOs were connected to at least one PHA, supporting functions like immunization registries, electronic lab results, and syndromic surveillance.
- 66% of connected HIOs provided data for COVID-19 response, with hospitalization and demographic data being most common.
- Barriers included limited PHA funding and competing priorities.
Conclusions:
- HIOs play a vital and growing role in public health reporting and data exchange.
- HIOs are strategically positioned to bridge information gaps and support PHAs, aligning with national efforts to modernize health data infrastructure.
Keywords:
HIOPHAUnited Statesdata exchangehealth informationhealth information exchangehealth information exchange organizationhealth information technologynational surveypublic health agencypublic health informaticssurveillanceMore Related Videos
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