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Whose Responsibility Is It? Implementing Patient-Prioritized Healthcare System Change in Oncology.

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This commentary explores challenges in integrating patient and family priorities into cancer research and care. It highlights the need for better understanding of patient-centered change and knowledge translation in oncology.

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Area of Science:

  • Public Health
  • Health Services Research
  • Cancer Care

Background:

  • An academic-community partnership in Newfoundland and Labrador, Canada, focused on cancer research and advocacy.
  • The group has fostered public dialogue and advocated for patient-informed health service changes.
  • Limited funding and understanding of implementation challenges persist.

Purpose of the Study:

  • To reflect on the integration of patient and family input into cancer care and research.
  • To raise awareness about the complexities of implementing patient-prioritized changes in oncology.
  • To encourage dialogue on stakeholder roles in patient-centered healthcare transformation.

Main Methods:

  • Reflective commentary based on experiences of an academic-community partnership.
  • Discussion of challenges in translating patient priorities into actionable oncology care changes.
  • Exploration of integrated knowledge translation concepts.

Main Results:

  • The partnership successfully created public spaces for cancer-related discussions and advocacy.
  • A key challenge remains in effectively implementing patient- and family-informed changes in oncology.
  • The need for clarity on responsibilities for driving patient-prioritized healthcare initiatives was identified.

Conclusions:

  • Implementing patient-prioritized change in oncology requires a deeper understanding of integrated knowledge translation.
  • Clarifying the roles of patients, families, and stakeholders is crucial for effective healthcare reform.
  • Further dialogue is needed to optimize patient and family involvement in cancer care and policy.