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Published on: April 22, 2015
Older Autistic People, Access and Experiences of Services, and the Factors That Affect This
Marion Hersh1, Panda Mery1, Michael Dawson1
1Biomedical Engineering, University of Glasgow, Glasgow G12 8LT, Scotland, UK.
Abstract:
This paper presents new empirical data obtained from interviews and focus groups on older (50 and over) autistic people's experiences of accessing a variety of services. The involvement of older autistic people and giving voice to their experiences was central to all aspects of the research process. This work makes a significant contribution to the scarce literature on older autistic people. In particular, it discusses the factors that act as barriers and enablers to the access to and productive use of services, the strategies used by participants to manage and improve their experiences, and the success of these strategies. It shows older autistic people as autonomous adults and active protagonists in their own lives, taking action to overcome the barriers they experience to accessing services on the same terms as everyone else, but that lack of understanding and support from service providers and the general public can undermine their strategies. Finally, this work provides a series of recommendations for service providers to improve (older) autistic people's service access and experiences.
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