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Pediatric Type 1 Diabetes Care in Indonesia: A Review of Current Challenges and Practice
Muhammad Fauzi1,2, Ghaisani Fadiana2,3,4, Dhiya Nadira5
1Universitas Airlangga - Dr. Soetomo General Hospital, Department of Child Health, Surabaya, Indonesia
Insights
Type 1 Diabetes Mellitus (T1DM) care in Indonesia faces challenges due to limited access to professionals, insulin, and monitoring devices. Strategic interventions are crucial to improve T1DM management and access to essential diabetes technologies for children and adolescents.
Area of Science:
- Pediatric Endocrinology
- Global Health
- Chronic Disease Management
Background:
- Type 1 Diabetes Mellitus (T1DM) is a global chronic condition affecting children and adolescents.
- Low-middle income countries, including Indonesia, face significant barriers to optimal T1DM care.
- Increasing T1DM prevalence in Indonesia, particularly on Java Island, with underreporting in rural areas.
Purpose of the Study:
- To evaluate the current status and future requirements for insulin and self-monitoring blood glucose (SMBG) in Indonesia.
- To highlight the challenges in accessing essential diabetes management tools and technologies.
- To emphasize the need for strategic interventions to enhance T1DM care quality and accessibility.
Main Methods:
- Analysis of data from the Indonesian Pediatric Society registry.
- Assessment of healthcare professional distribution, focusing on pediatric endocrinologists.
- Evaluation of access to insulin, diabetes technologies, and SMBG devices.
- Review of national insurance coverage for T1DM care components.
Main Results:
- Indonesia experiences a growing number of children with T1DM, with uneven geographical distribution.
- A critical shortage of pediatric endocrinologists leads to a low specialist-to-patient ratio.
- Limited access to and coverage of essential T1DM management tools, such as SMBG devices, imposes financial burdens on families.
- Access to advanced diabetes technologies for improved glycemic control remains restricted.
Conclusions:
- Urgent strategic interventions are necessary to address the disparities in T1DM care within Indonesia.
- Improving access to insulin, SMBG devices, and comprehensive diabetes technologies is vital for better patient outcomes.
- Addressing the uneven distribution of specialists and enhancing healthcare infrastructure are key to overcoming T1DM management challenges in Indonesia.
Abstract:
Type 1 diabetes mellitus (T1DM) is a chronic condition requiring lifelong management that affects a large number of children and adolescents globally. While diabetes care has improved over the years, low-middle income countries, such as Indonesia, still struggle to achieve optimal diabetes care due to limited access to healthcare professionals, insulin, diabetes technologies, and self-monitoring blood glucose (SMBG) devices. Data from the Indonesian Pediatric Society registry has reflected a stark increase in the number of children with T1DM, with the current prevalence significantly concentrated on Java island and a noticeable underreporting in rural regions. Another major challenge is the uneven distribution of pediatric endocrinologists, resulting in a low specialist-to-patient ratio. This imbalance, coupled with inadequate access to comprehensive diabetes care, complicates effective T1DM management. While the national insurance covers a portion of costs associated with T1DM care, vital aspects of T1DM management including SMBG devices are still not covered, resulting in significant financial burden to families. Access to diabetes technologies that improve glycemic control and quality of life of patients is also still largely limited. This paper evaluates the current state and future needs for insulin and SMBG in Indonesia, emphasizing the necessity of strategic interventions to improve access and quality of diabetes care.
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