Unlocking success: community engagement for enhanced HIV care outcomes
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View abstract on PubMed
Summary
This summary is machine-generated.Community engagement and human-centered design improve HIV research by involving people with HIV and social service providers. This approach ensures interventions are relevant and builds trust for impactful, sustainable public health initiatives.
Area Of Science
- Public Health
- Health Equity
- Social Determinants of Health
Background
- Social determinants significantly impact health outcomes, yet research on HIV care often overlooks non-clinical factors like residential mobility and social service access.
- Understanding these factors is crucial for improving the HIV care continuum, especially for individuals with fragmented connections to healthcare.
- This study addresses the gap by integrating clinical and non-clinical data, guided by community input.
Purpose Of The Study
- To investigate how residential mobility and social service engagement influence the HIV care continuum.
- To develop community-informed, research-based interventions for individuals living with HIV.
- To share an effective community engagement model for public health research.
Main Methods
- Employed human-centered design (HCD) principles in partnership with the Indiana CTSI's Research Jam.
- Recruited a diverse panel of consultants, including people with HIV, clinicians, and social service agency representatives.
- Conducted six engagement sessions using HCD tools to inform research design and intervention development.
Main Results
- Engaged 48 consultants, with 35 actively participating in research activities.
- Consultants actively guided data analysis, identified data gaps, interpreted findings, and provided feedback on interventions.
- Consultants co-presented research findings at a health equity conference, demonstrating meaningful collaboration.
Conclusions
- Community engagement, particularly using HCD, adds significant value to HIV research by fostering trust, empathy, and collaboration.
- HCD enhances consultant retention and empowers community members as equal partners in research.
- This person-centered approach is vital for creating relevant, impactful, and sustainable public health research and interventions.
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