Parental experiences of using continuous glucose monitoring in their young children with early-stage type 1 diabetes:

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Alison G Roberts1,2, Alexandra S Tully2, Sabrina K Binkowski2

  • 1Department of Endocrinology and Diabetes, Perth Children's Hospital, Perth, WA, Australia.

Frontiers in Clinical Diabetes and Healthcare
|November 29, 2024
PubMed

Insights

Parents reported positive experiences using continuous glucose monitoring (CGM) for young children with type 1 diabetes. Information from CGM reduced uncertainty, and participation in research provided valuable support.

Area of Science:

  • Pediatrics
  • Endocrinology
  • Diabetes Research

Background:

  • Type 1 diabetes (T1D) management in young children presents unique challenges.
  • Continuous Glucose Monitoring (CGM) offers potential benefits for T1D management.
  • Understanding parental experiences with CGM in early-stage T1D is crucial.

Purpose of the Study:

  • To explore parents' experiences using CGM in young children with early-stage T1D.
  • To investigate parental perceptions of CGM's impact on diabetes management and family life.
  • To identify factors influencing the acceptance and utilization of CGM technology in pediatric T1D.

Main Methods:

  • Semi-structured phone interviews were conducted with parents of children in the ENDIA CGM sub-study.
  • Interviews focused on experiences during a blinded CGM monitoring period.
  • Thematic analysis was applied to transcribed interview data to identify key themes.

Main Results:

  • Three primary themes emerged: information empowerment, family acceptance of CGM, and research involvement as support.
  • Parents reported positive experiences and high tolerance for CGM use in their children.
  • Knowledge of glucose levels and patterns empowered parents and reduced uncertainty.

Conclusions:

  • Parents reported a positive experience with blinded CGM use in young children with T1D.
  • CGM use was well-tolerated by children and empowering for parents.
  • This study offers novel insights into parental experiences with CGM in very young children diagnosed with T1D.
Abstract

Keywords:
childrencontinuous glucose monitoringearly-stage type 1 diabetesislet autoimmunitymonitoringparents’ perceptionstagingtype 1 diabetes

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