Health-related quality of life of children and adolescents with sickle cell disease: An evolutionary concept analysis
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View abstract on PubMed
Summary
This summary is machine-generated.Health-Related Quality of Life (HRQOL) in children and adolescents with Sickle Cell Disease (SCD) is complex. This review clarifies its attributes, antecedents, and consequences, aiding future research and care.
Area Of Science
- Pediatric Hematology
- Quality of Life Research
- Concept Analysis
Background
- Understanding Health-Related Quality of Life (HRQOL) in pediatric Sickle Cell Disease (SCD) is limited due to sparse research.
- Existing literature lacks a comprehensive conceptualization of HRQOL for this specific population.
Purpose Of The Study
- To elucidate the attributes, antecedents, and consequences of HRQOL in children and adolescents with SCD.
- To apply Rodgers' et al. (2018) concept analysis framework for a structured understanding of HRQOL in pediatric SCD.
Main Methods
- Systematic literature search to identify studies on HRQOL in pediatric SCD.
- Inclusion of 75 articles (70 quantitative, 2 mixed-methods, 3 qualitative).
- Categorization of findings into attributes, antecedents, consequences, surrogate terms, related concepts, and an exemplar.
Main Results
- Identified nine key attributes of HRQOL: multidimensionality, dynamism, illness acknowledgment, emotional balance, coping, pain management, stigma, treatment burden, palliative care, and resilience.
- Antecedents include disease knowledge, self-efficacy, social support, spirituality, disease severity, healthcare access, environment, and finances.
- Consequences encompass personal independence, improved health, psychological well-being, family well-being, enhanced relationships, school performance, and overall long-term outcomes.
Conclusions
- This concept analysis provides a foundational overview of HRQOL in pediatric SCD.
- Findings offer guidance for future research, nursing care, and clinical practice improvements.
- A clearer understanding of HRQOL is crucial for holistic management of children and adolescents with SCD.
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