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Metaphor as methodology: Methodological reflections on visualizing the dementia journey.

Elaine C Wiersma¹, Sherry L Dupuis², Pauline Sameshima³

¹Centre for Education and Research on Aging & Health, Department of Health Sciences, Lakehead University, Canada.

Dementia (London, England)

|December 2, 2024

Summary

This study explores using metaphors and symbols as a research method to understand dementia experiences. It helps people with dementia and their care partners share their journey and fosters new insights.

Keywords:

creative methods dementia experience dementia journey metaphors qualitative methodology qualitative research

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Area of Science:

Gerontology
Qualitative Research Methods
Dementia Studies

Background:

Metaphors are commonly used in Western culture to conceptualize dementia.
The lived experiences of individuals with dementia and their care partners, particularly their use of metaphors and symbols, remain underexplored.

Purpose of the Study:

To explore the utility of metaphor as a methodology for understanding dementia.
To support individuals living with dementia and their care partners in reflecting on and sharing their experiences.

Main Methods:

Employed metaphor and symbols as a methodology to map the dementia journey.
Collected data from the perspectives of people with dementia, care partners, and health and social care providers in Ontario, Canada.

Main Results:

Metaphorical approaches can effectively frame the dementia experience.
This methodology facilitates the exploration of complexity and multidimensionality in dementia.
It provides a platform for individuals to articulate their unique perspectives on living with dementia.

Conclusions:

Metaphor as methodology offers a novel approach to dementia research.
It has the potential to create new avenues for understanding dementia.
This approach empowers individuals with dementia and their care partners to share their narratives.