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Knowledge of Established Conditions List and Associated Policies and Procedures Among Pediatricians and Early
Asha Yadav1, Randall Alan Phelps2, Jane Squires1
1College of Education, University of Oregon, Eugene, OR.
Insights
Pediatricians and Early Intervention (EI) personnel show low knowledge of established conditions lists, leading to underutilization and potential referral failures for eligible children. Improving list accessibility and training is crucial for direct EI enrollment.
Area of Science:
- Pediatric Health
- Developmental Pediatrics
- Public Health Policy
Background:
- Many children at risk for disability do not access Early Intervention (EI) services despite automatic eligibility criteria.
- State EI programs use established conditions lists for automatic enrollment, but professional knowledge and use of these lists are poorly understood.
- Understanding knowledge gaps among healthcare professionals is vital for improving EI service access.
Purpose of the Study:
- To assess pediatricians' and EI personnel's knowledge of established conditions lists and related policies.
- To examine the utilization of these lists in referral and eligibility determination.
- To identify barriers and facilitators to list utilization and gather recommendations for improvement.
Main Methods:
- A mixed-methods study involving surveys and interviews with 193 EI personnel and 69 pediatricians.
- Quantitative analysis of self-rated knowledge and utilization using descriptive statistics.
- Qualitative thematic analysis of interview data to explore experiences and recommendations.
Main Results:
- Pediatricians reported lower knowledge of established conditions lists and policies compared to EI personnel.
- Both groups recognized the lists' importance but noted significant underutilization and lack of professional development.
- Key recommendations focused on enhancing list content, accessibility, and statewide distribution.
Conclusions:
- Gaps in knowledge and utilization of established conditions lists by pediatricians and EI personnel can impede access to crucial EI services for eligible children.
- Improving the accessibility, usability, and distribution of these lists is essential.
- Targeted professional development and enhanced list features are recommended to ensure direct EI enrollment.
Objective:
Despite automatic eligibility, many children with medical conditions associated with increased risk of disability do not receive Early Intervention (EI) services. State EI programs have compiled lists of established conditions to facilitate automatic enrollment; yet little is known about professionals' knowledge and utilization of these lists. This study examined the knowledge of these established conditions lists and associated policies and procedures among pediatricians and EI personnel. State initiatives and approaches undertaken to improve familiarity and utilization of the list, along with recommendations for its improvement were examined.
Method:
In this mixed-methods study, self-rated survey data were collected from 193 EI personnel responsible for intake and eligibility evaluations, and 69 pediatricians providing primary care. Follow-up interviews were then conducted with 45 EI personnel and 22 pediatricians. Quantitative data were analyzed using descriptive statistics, and qualitative data underwent thematic analysis.
Results:
Pediatricians rated their knowledge of their state's established conditions list and related policies and procedures lower than EI personnel. Both groups emphasized the significance of the list in referral and eligibility determination but highlighted its underutilization and lack of professional development activities. Consequently, recommendations were made to improve state established conditions lists and their utilization in ensuring direct EI enrollment for eligible children.
Conclusion:
The lack of shared knowledge and utilization of established conditions lists and associated policies and procedures among pediatricians and EI personnel may result in referral failure for eligible children. Addressing this challenge requires improvement in the content and statewide distribution to improve accessibility and usability.
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