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Updated: Jun 5, 2025

A Precision Medicine Tool for Measurement and Monitoring of Hemoglobin S in Sickle Cell Disease Patients Receiving Transfusion Therapy
Giving Choice a Voice: Commentary on Development of the World Federation of Hemophilia Shared Decision-Making Tool
Leonard A Valentino1, Kate Khair2
1Rush University Medical Center, Hemophilia and Thrombophilia Center, Chicago, Illinois, USA.
Abstract:
The shared decision-making (SDM) tool developed by the World Federation of Hemophilia (WFH) provides a clear and concise overview of the process by which people with haemophilia (PwH) can collaborate with their healthcare professionals (HCPs) to engage and arrive at a therapeutic decision. This tool will be useful for all people with all bleeding disorders, not just PwH.
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