Understanding the current provisions of support for people with an intellectual disabilities and/or autism in crisis:

Samuel Tromans1,2, Ian Summers3,4, Shahbaz Abdullah2

  • 1SAPPHIRE Group, Department of Population Health Sciences, University of Leicester, UK.

Insights

The Blue-Light strategy for people with intellectual disability and/or autism (PwID/A) is reactive, with carers reporting inconsistent support and prolonged crises. Standardized crisis support and further debate on inpatient care for PwID/A are needed.

Area of Science:

  • Intellectual Disability Services
  • Autism Spectrum Disorder Care
  • Mental Health Crisis Management

Background:

  • UK inpatient beds for people with intellectual disability and/or autism (PwID/A) have significantly reduced.
  • The Blue-Light strategy was implemented to prevent inappropriate admissions.
  • Research on Blue-Light's effectiveness in PwID/A crisis management is lacking.

Purpose of the Study:

  • To assess the impact of the Blue-Light strategy on crisis presentations for PwID/A.
  • To understand the experiences of professionals and carers involved in the Blue-Light process.

Main Methods:

  • A mixed-methods approach was used in Cornwall, UK.
  • Included a Likert-based survey of health and social-care professionals (n=10 patient journeys examined).
  • Included semi-structured interviews with 10 patient-carers and analysis of patient data.

Main Results:

  • Professionals understood the Blue-Light process but found it reactive; many desired recommissioned specialist beds.
  • Carers reported inconsistent professional support, prolonged crises, and a lack of defined crisis support.
  • Limited infrastructure and inadequate supervision for third-sector providers were identified.

Conclusions:

  • Current crisis support for PwID/A is not standardized and leaves carers unsupported.
  • An evidence-based discussion on crisis support and the role of inpatient care for PwID/A is necessary.
Abstract

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