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Understanding the current provisions of support for people with an intellectual disabilities and/or autism in crisis:
Samuel Tromans1,2, Ian Summers3,4, Shahbaz Abdullah2
1SAPPHIRE Group, Department of Population Health Sciences, University of Leicester, UK.
Insights
The Blue-Light strategy for people with intellectual disability and/or autism (PwID/A) is reactive, with carers reporting inconsistent support and prolonged crises. Standardized crisis support and further debate on inpatient care for PwID/A are needed.
Area of Science:
- Intellectual Disability Services
- Autism Spectrum Disorder Care
- Mental Health Crisis Management
Background:
- UK inpatient beds for people with intellectual disability and/or autism (PwID/A) have significantly reduced.
- The Blue-Light strategy was implemented to prevent inappropriate admissions.
- Research on Blue-Light's effectiveness in PwID/A crisis management is lacking.
Purpose of the Study:
- To assess the impact of the Blue-Light strategy on crisis presentations for PwID/A.
- To understand the experiences of professionals and carers involved in the Blue-Light process.
Main Methods:
- A mixed-methods approach was used in Cornwall, UK.
- Included a Likert-based survey of health and social-care professionals (n=10 patient journeys examined).
- Included semi-structured interviews with 10 patient-carers and analysis of patient data.
Main Results:
- Professionals understood the Blue-Light process but found it reactive; many desired recommissioned specialist beds.
- Carers reported inconsistent professional support, prolonged crises, and a lack of defined crisis support.
- Limited infrastructure and inadequate supervision for third-sector providers were identified.
Conclusions:
- Current crisis support for PwID/A is not standardized and leaves carers unsupported.
- An evidence-based discussion on crisis support and the role of inpatient care for PwID/A is necessary.
Background:
There has been significant reduction in inpatient beds for people with intellectual disability and/or autism (PwID/A) in the UK in the last decade following high profile national scandals in specialist psychiatric hospitals. To reduce inappropriate admissions a new strategy (Blue-Light, an emergency multi-disciplinary meeting to prevent admission to hospital) was introduced. However, there is no research on the influence of Blue-Light on crisis management for PwID/A.
Aim:
To assess Blue-Light's impact on PwID/A's crisis presentationsMethods:Co-produced with experts-by-experience, a mixed methods approach using a 13 question Likert based survey of health and social-care professionals along with semi-structured interviews of carers involved with consecutive Blue-Light patient reviews was undertaken in Cornwall UK (population: 538,000). Patient data was accessed to understand the patient journey. All data analysis was descriptive in nature. Semi-structured interviews were transcribed and thematically analysed using Braun and Clarke's six-step process.
Results:
Ten patient journeys were examined. Staff interviewed had a good understanding of the Blue-Light process, Blue-Light activation practical challenges and considered Blue-Light reactive. Nearly half wanted ID/A specialist beds recommissioned. A majority wanted improved supervision and standards for third sector providers. Semi-structured interviews of 10 patient-carers identified a lack of consistency from professionals, limited infrastructure provision, the prolongation of crises and a lack of definition of crisis as carers did not feel supported by services.
Conclusions:
Current crisis support systems are not standardised and often leave carers feeling unsupported in crises. An evidence-based debate of crisis support and the inpatient role for PwID/A is required.
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