Community Engagement Studios to advance multi-site research with older adults
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View abstract on PubMed
Summary
This summary is machine-generated.Community Engagement (CE) Studios effectively gathered feedback from older adults and care partners to improve multi-site clinical trial design. This feedback enhanced recruitment, retention, and study protocols for greater research program success.
Area Of Science
- Clinical and Translational Science
- Community Engagement in Research
- Geriatric Medicine
Background
- Multi-site research requires effective community engagement to ensure feasibility and relevance.
- Older adults with chronic conditions and their care partners offer valuable insights for study design.
- Previous methods for engaging these populations in research development were not standardized across sites.
Purpose Of The Study
- To describe the process and outcomes of operationalizing multi-site Community Engagement (CE) Studios.
- To gather feedback from community experts on the feasibility, efficacy, effectiveness, and implementation of audio recording clinic visits for patients with multimorbidity.
- To inform the development of a multi-site research program through expert input.
Main Methods
- Three academic health science centers collaborated to create a joint CE Studio guide.
- Community Experts (older adults with chronic conditions and care partners) participated in iterative, site-based Studios.
- Feedback was systematically collected and compared across sites on recruitment, study protocol, reminders, and technology.
Main Results
- Eighteen older adults and care partners provided critical feedback across three states.
- Expert input influenced study invitations, information sheets, and reminders, improving clarity and engagement.
- Concerns regarding participant disappointment with randomization were addressed, with recommendations for investigators.
Conclusions
- Multi-site Community Engagement Studios should be conducted consecutively to facilitate learning between teams.
- A standardized CE Studio guide and toolkit are crucial for comparable reports and research program development.
- The CE Studio process successfully informed a research program that now includes three federally funded clinical trials.
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