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Community out-of-hours palliative care - 'It's a patchwork of services': A qualitative study exploring care provision
Alice M Firth1, Joanna Goodrich1, Inez Gaczkowska1
1Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute of Palliative Care Policy & Rehabilitation, London, UK.
Optimal out-of-hours community palliative care models are identified, highlighting the need for integrated services and skilled symptom management. Professionals
Area of Science:
- Palliative Care Research
- Healthcare Service Delivery Models
- Qualitative Health Research
Background:
- Community palliative care patients require 24/7 access to services.
- Current out-of-hours (OOH) community palliative care models are varied and not well understood.
- Optimal models for OOH community palliative care are yet to be determined.
Purpose of the Study:
- To identify and characterize existing OOH community palliative care models in the UK.
- To explore healthcare professionals' perspectives on barriers and facilitators to high-quality OOH care.
- To inform the development of improved OOH palliative care service delivery.
Main Methods:
- An exploratory qualitative study design was employed.
- Semi-structured interviews were conducted with 39 healthcare professionals.
- Reflexive thematic analysis was used to analyze interview data.
Main Results:
- Four distinct OOH palliative care models were identified, varying in service integration, provider balance (generalist/specialist), and care type (clinical/advisory).
- Key barriers included challenges in coordinating multi-service care, the need for timely symptom management, and resource limitations.
- Facilitators for high-quality OOH care involved a single point of access, integrated service structures, and skilled symptom management.
Conclusions:
- Four models of OOH community palliative care were characterized from healthcare professional perspectives.
- Key facilitators for optimal OOH care include integrated services and effective symptom management.
- Recommendations are provided for a potential model to enhance OOH palliative care delivery.
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