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Pediatric Subspecialist Referrals to Peer Support for Families.

Edward L Schor1, Tali Klima2, Holly K M Henry3

  • 1Department of Pediatrics, Stanford University, Stanford, USA. EdSchor@gmail.com.

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PubMed
Summary

Pediatric subspecialists often overlook referring families of children with special health care needs (CSHCN) to valuable peer support. Increased physician education and institutional resources can improve access to this crucial support system.

Keywords:
Care coordinationChildren with special health care needsPediatric subspecialty carePeer support

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Area of Science:

  • Pediatric Subspecialty Care
  • Health Services Research
  • Patient Support Systems

Background:

  • Families of children with special health care needs (CSHCN) benefit from peer support.
  • Pediatric subspecialists are key providers and educators for these families.
  • Referral rates to peer support by subspecialists are currently unknown.

Purpose of the Study:

  • To investigate pediatric subspecialists' opinions on peer support for CSHCN families.
  • To determine the frequency of referrals to peer support services.
  • To identify factors influencing these referral practices.

Main Methods:

  • Statewide online survey of California pediatric subspecialists.
  • Data collected on opinions, referral frequency, practice, and demographics.
  • Weighted data, descriptive statistics, and regression models used for analysis.

Main Results:

  • Low familiarity with community peer support resources among subspecialists.
  • High positive regard for peer support (over 85%).
  • Only 40% of practices frequently referred families; referrals influenced by resource knowledge and practice factors, not individual opinion.

Conclusions:

  • Referral to peer support is feasible within pediatric subspecialty care.
  • Physician education, resource availability, and dedicated time/staff are crucial for increasing referrals.
  • Further research on families' referral experiences is recommended.