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Related Concept Videos

Barriers to Effective Communication II01:21

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The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
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Semantic barriers:
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Barriers to Effective Communication I01:30

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A communication barrier is any distortion or interruption during a conversation, resulting in miscommunication of the message. A good communicator should know these barriers and continuously check for the listener's understanding by obtaining feedback.
Communication barriers include the following:
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Related Experiment Video

Updated: Jun 5, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Addressing barriers to global multidisciplinary stakeholder inclusivity: Lessons from global orofacial cleft research

Niki Kouvroukoglou1, Sanita Sandhu2, Barbara Delage3

  • 1Medical School, University of Edinburgh, Edinburgh, UK.

Journal of Global Health
|December 12, 2024
PubMed
Summary

This study adapted the Child Health and Nutrition Research Initiative (CHNRI) methodology for global research priority setting in orofacial clefts. It aimed to increase inclusivity by involving diverse stakeholders, including patients and parents, to improve future research representation.

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Area of Science:

  • Public Health
  • Health Services Research
  • Global Health

Background:

  • Inclusivity in research priority setting is crucial for representing all stakeholder perspectives.
  • Experienced healthcare workers' insights are vital but often underrepresented in formal research.
  • Multidisciplinary healthcare settings present unique challenges to inclusivity in research.

Purpose of the Study:

  • To modify the Child Health and Nutrition Research Initiative (CHNRI) methodology to enhance inclusivity in research priority setting.
  • To address barriers preventing the involvement of diverse stakeholders, particularly in multidisciplinary healthcare.
  • To conduct a global research priority-setting exercise for orofacial clefts with improved inclusivity.

Main Methods:

  • Adapted the CHNRI methodology for a global research priority-setting exercise on orofacial clefts.
  • Included research experts, multidisciplinary clinicians, patients, parents, and non-governmental organizations (NGOs).
  • Implemented methodological changes such as survey edits, subgroup discussions, demographic sections, multilingual translations, and alternative dissemination.

Main Results:

  • Received 412 responses and 1420 questions from 78 countries and 18 specialties.
  • Achieved broad participation but noted challenges in equitable representation, with surgeons forming the largest group (30%) and patient/parent groups a smaller proportion (9%).
  • Managed responses in three languages and addressed issues with non-research question submissions.

Conclusions:

  • This exercise was among the first CHNRI initiatives to involve patients, parents, clinicians, and researchers at the question submission stage globally.
  • The study details an approach to address inclusivity challenges in research priority setting.
  • Demographic data are reported as a benchmark for future CHNRI exercises aiming for greater inclusivity.