The decision to disclose to your child they are a childhood cancer survivor: a qualitative study of barriers and facilitators using the theoretical domain framework
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View abstract on PubMed
Summary
This summary is machine-generated.Parents often delay telling childhood cancer survivors about their diagnosis due to fear of negative consequences. However, survivors have a right to know, highlighting the need for interventions to support these difficult conversations.
Area Of Science
- Pediatric Oncology
- Cancer Survivorship
- Health Communication
Background
- Childhood cancer survivors face increased risks of long-term health issues.
- Adherence to recommended surveillance for survivors is often inadequate.
- Lack of disclosure of cancer history by parents is a barrier to survivor surveillance.
Purpose Of The Study
- To identify barriers and enablers for parents discussing cancer history with their children.
- To understand parental perspectives on disclosing childhood cancer diagnoses.
Main Methods
- Semi-structured interviews with parents of childhood cancer survivors who delayed disclosure.
- Interviews guided and analyzed using the Theoretical Domain Framework (TDF).
- Line-by-line coding of transcripts mapped to TDF domains.
Main Results
- Parents feared cancer disclosure could lead to hypervigilance and identity issues.
- Parental emotional distress related to their child's cancer experience was a barrier.
- Clinical team influence and survivor's right to know were key enablers.
- Parents believed knowledge empowers survivors to protect their health.
Conclusions
- Parents recognize the importance of disclosure for survivor empowerment and health.
- Disclosure is a challenging conversation that parents often avoid.
- Interventions are needed to support parents in discussing cancer history with survivors.
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