Experiences of participation in daily life of adolescents and young adults with cerebral palsy: A scoping review
View abstract on PubMed
Summary
This summary is machine-generated.Young adults with cerebral palsy (CP) strive for full participation in adult life, facing environmental and attitudinal barriers. Supportive networks are crucial for navigating these challenges and achieving chosen life paths.
Area Of Science
- Rehabilitation Science
- Disability Studies
- Young Adult Health
Background
- Young adulthood is a critical developmental period characterized by transitions into independence and societal roles.
- Cerebral palsy (CP) presents unique challenges to participation in key life situations during this phase.
- Understanding the lived experiences of young adults with CP is essential for developing targeted support.
Purpose Of The Study
- To synthesize the experiences of individuals aged 15–34 with cerebral palsy (CP) in young adulthood.
- To identify facilitators and barriers to participation in key life situations for this demographic.
- To inform interventions promoting full adult life participation for young people with CP.
Main Methods
- A mixed-methods scoping review of electronic databases (January 2001–August 2023).
- Mapping of participation foci and outcomes to the International Classification of Functioning, Disability and Health (ICF).
- Convergent integrated analysis and thematic synthesis of 38 publications (32 studies, 2759 participants).
Main Results
- The unifying theme was 'Claiming my adulthood and "doing" life,' highlighting effortful engagement with adult roles.
- Significant barriers included physical environmental accessibility and negative societal attitudes towards disability.
- A strong 'circle of support,' primarily family, provided a crucial foundation.
Conclusions
- Young people with CP aspire to participate fully in adult life, mirroring their peers' goals.
- Enhancing community accessibility and fostering inclusive, supportive health environments are vital.
- These improvements will empower young adults with CP to pursue their chosen life paths.
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