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Related Concept Videos

Continuing Care01:25

Continuing Care

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Nursing Ethical Principles II01:27

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Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
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Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

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Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
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Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch01:15

Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch

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The history of therapeutic communication can be traced back to Florence Nightingale, who emphasized the importance of developing trusting relationships with patients. She taught that the presence of nurses with patients results in therapeutic healing.
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Ethical Dilemmas II01:30

Ethical Dilemmas II

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Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
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Ethical Issues01:27

Ethical Issues

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Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
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  5. Health Sciences
  7. Health Services And Systems
  9. Family Care
  11. Communication About Incurable Illness And Remaining Life Between Spouses And Patients With Incurable Illness Receiving Specialized Home Care: Effects Of A Family Caregiver-targeted Web-based Psycho-educational Intervention.
  1. Home
  3. Research Domains
  5. Health Sciences
  7. Health Services And Systems
  9. Family Care
  11. Communication About Incurable Illness And Remaining Life Between Spouses And Patients With Incurable Illness Receiving Specialized Home Care: Effects Of A Family Caregiver-targeted Web-based Psycho-educational Intervention.

Related Experiment Video

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
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Communication about incurable illness and remaining life between spouses and patients with incurable illness receiving specialized home care: effects of a family caregiver-targeted web-based psycho-educational intervention.

Sandra Doveson1,2, Louise Häger Tibell3,4, Kristofer Årestedt5,6

  • 1Department of Nursing Science, Sophiahemmet University, Box 5605, Stockholm, 114 86, Sweden. sandra.doveson@shh.se.

BMC Palliative Care
|December 16, 2024

View abstract on PubMed

Summary
This summary is machine-generated.
Keywords:
CommunicationEHealth/digital supportEnd of lifeFamily caregivers

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A web-based intervention did not significantly improve communication between spousal caregivers and patients about incurable illness. Many caregivers already discussed illness impacts but avoided end-of-life conversations.

Area of Science:

  • Palliative Care
  • Digital Health Interventions
  • Family Caregiving Research

Background:

  • Family caregivers, especially spouses, are vulnerable and require support.
  • Communication about incurable illness is crucial but challenging for spousal caregivers.
  • Home-based care for incurable illnesses is increasing, highlighting the need for caregiver support.

Purpose of the Study:

  • To explore the effects of a web-based psycho-educational intervention on spousal caregiver communication.
  • To assess communication about incurable illness and remaining life between spouses and patients.
  • To evaluate the intervention's impact on communication in specialized home care settings.

Main Methods:

  • A pre-post-design study involving 39 spousal caregivers.
Palliative care
Spouses
Web-based support
  • A web-based intervention with videos and texts on family caregiving.
  • Questionnaires administered at baseline and after 4 weeks, analyzed with Wilcoxon signed-rank test.

    • Main Results:

    • No significant changes in communication were observed post-intervention.
    • Most spouses discussed illness impact (physical/psychological) at baseline.
    • A significant portion (46-59%) had never discussed end-of-life management with the patient.

    Conclusions:

    • Spousal caregivers frequently discuss illness consequences, indicating their importance.
    • Barriers to discussing end-of-life matters need further investigation.
    • Future interventions should address communication barriers and support needs, particularly regarding remaining life discussions.