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Developing and Testing a Two-Part Intervention: Enhancing Dementia Instruction and Tool in Home Hospice Care.
Sophia Rose Geisser1, Abigail Amponsah2, Felix Vasquez3
1Department of Psychology and the Alabama Research Institute on Aging, The University of Alabama, Tuscaloosa, AL, USA.
Summary
A new intervention, Enhancing Dementia Instruction and Tool in Home Hospice Care (EDITH-HC), was developed to support family care partners of dementia patients. Pilot testing showed the tool is feasible and acceptable for improving dementia end-of-life care.
Area of Science:
- Gerontology
- Palliative Care
- Dementia Care
Background:
- Family care partners (FCP) of individuals with dementia experience significant stress.
- Hospice professionals often lack specialized training to support FCP in dementia care.
- There is a need for effective interventions to address FCP stressors in end-of-life dementia care.
Purpose of the Study:
- To describe the development and pilot testing of the Enhancing Dementia Instruction and Tool in Home Hospice Care (EDITH-HC) intervention.
- To assess the initial feasibility and acceptability of the EDITH-HC intervention among hospice clinicians and FCP.
Main Methods:
- Intervention materials (instructional videos and a joint worksheet) were co-developed with FCP, hospice clinicians, and experts.
- Development involved two rounds of structured input and revision.
- A single-arm pilot test with 13 participants assessed feasibility and acceptability.
Main Results:
- Initial pilot testing indicated that the EDITH-HC intervention is feasible to implement in home hospice settings.
- The intervention was found to be acceptable to both hospice clinicians and FCP.
- A larger randomized pilot study is currently underway to further evaluate feasibility and acceptability.
Conclusions:
- The EDITH-HC intervention shows promise as a feasible and acceptable tool for supporting FCP in dementia end-of-life care.
- This intervention has the potential to improve the quality of care provided to persons with dementia and their families.
- Further research is warranted to confirm the effectiveness of EDITH-HC in a larger, randomized trial.
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