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A 'normal' life: a qualitative study exploring parents' experiences of everyday life with a child diagnosed with

Gitte Færk1,2,3, Elisabeth Søndergaard4, Lone Skov1

  • 1Department of Dermatology and Allergy, Herlev and Gentofte Hospital, University Hospital of Copenhagen, Copenhagen, Denmark.

Scandinavian Journal of Primary Health Care
|December 23, 2024
PubMed

Insights

Parents of children with atopic dermatitis (AD) and comorbidities face significant daily challenges beyond medical treatment. They employ strategies like risk avoidance and pursuing normalcy to manage their child's condition and ensure a good quality of life.

Area of Science:

  • Pediatrics
  • Dermatology
  • Psychology

Background:

  • Atopic dermatitis (AD) and related atopic diseases are increasing in children.
  • Comorbidities in children with AD complicate management and daily life.
  • Parents are primary caregivers and play a crucial role in managing chronic childhood illnesses.

Purpose of the Study:

  • To explore the experiences of parents managing the everyday tasks associated with their children's atopic dermatitis and comorbidities.
  • To identify parental strategies for coping with the challenges of raising a child with chronic atopic conditions.

Main Methods:

  • Qualitative study involving face-to-face interviews.
  • Eleven families with children aged 1–5 years with AD and at least one atopic comorbidity (food allergy, allergic rhinoconjunctivitis, or asthma) participated.
  • Study conducted in the Capital Region of Denmark.

Main Results:

  • Families engage in numerous tasks beyond direct medical treatment, both inside and outside the home.
  • Parents utilize three main strategies: risk avoidance, pursuing a normal childhood, and good parenting.
  • These strategies are driven by the desire to provide their child with as normal a childhood as possible.

Conclusions:

  • Healthcare professionals should recognize the extensive "invisible work" parents perform.
  • Awareness of parental workload, even when downplayed, is essential for effective care.
  • Understanding parents as individuals can strengthen the healthcare provider-patient relationship.
Abstract

Keywords:
Multimorbidityallergiesatopic dermatitischildren preschoolparenting

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