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  11. What It Looks Like To 'mind The Gaps' In A Midwest Survivorship Clinic For Childhood Cancer Survivors

What it looks like to 'mind the gaps' in a Midwest survivorship clinic for childhood cancer survivors

Stijn Hentzen1, Taylor Adams1, Kyla Alsman2

  • 1Department of Internal Medicine, Kansas University Medical Center, Kansas City, KS, USA.

Health Care Transitions
|December 23, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Childhood cancer survivors require specialized care due to complex histories and secondary cancers. Survivorship transition clinics (STCs) address common care gaps, improving outcomes for this growing population.

Area of Science:

  • Oncology
  • Public Health
  • Healthcare Management

Background:

  • Childhood cancer survivor (CCS) population is growing due to increased prevalence and improved treatments.
  • CCS require lifelong, guideline-based survivorship care into adulthood.
  • Significant gaps exist in CCS care, including medical record documentation, knowledge transfer, and healthcare access.

Purpose of the Study:

  • To describe the patient cohort within a US Midwest survivorship transition clinic (STC).
  • To outline the clinic's strategies for addressing identified care gaps in childhood cancer survivors.
  • To evaluate the effectiveness of STCs as a model for managing complex CCS needs.

Main Methods:

  • Retrospective chart review of patients within the STC from 2014 to 2022.
  • IRB approval obtained prior to data collection.
Keywords:
Access to careCancer survivorshipCare gapChildhood cancer

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  • Analysis of patient demographics, cancer diagnoses, treatment histories, and outcomes.

    • Main Results:

    • 261 patients identified, with an average age of 12 at diagnosis and 28 at clinic establishment.
    • Common diagnoses included acute lymphoblastic leukemia (24.5%) and Hodgkin's Lymphoma (19.2%).
    • High rates of chemotherapy (93.5%), radiation (52.9%), and bone marrow transplant (15.7%) were observed; 11.1% developed secondary malignancies.

    Conclusions:

    • The clinical diversity and treatment complexity of CCS, including secondary malignancies, necessitate close follow-up and adherence to survivorship guidelines.
    • STCs, utilizing local partnerships and specialized nursing navigators, effectively address common care gaps.
    • Despite limitations, STCs represent a robust model for managing the unique and growing needs of childhood cancer survivors.
    Health equity
    Rural healthcare
    Secondary malignancy