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Peer support interventions for young adults with inflammatory bowel diseases
Sneha Dave1, Amy Bugwadia1,2, Sara Ahola Kohut3,4,5
1Generation Patient, USA.
Insights
Peer support is crucial for young adults with Inflammatory Bowel Diseases (IBD). Further research and multi-stakeholder collaboration are needed to establish peer support as a valuable intervention for this population.
Area of Science:
- Gastroenterology
- Patient Support
- Adolescent and Young Adult Health
Background:
- Inflammatory Bowel Diseases (IBD) significantly impact adolescents and young adults (AYA).
- Young adults with IBD often experience isolation and require tailored support systems.
- Existing support structures may not fully address the unique needs of this demographic.
Purpose of the Study:
- To highlight the importance of peer support for adolescents and young adults (AYA) with IBD.
- To emphasize the need for increased research into the efficacy of peer support interventions.
- To advocate for multi-stakeholder, peer-led collaboration in IBD patient care.
Main Methods:
- A year-long learning community, the Roundtable on Young Adults with Inflammatory Bowel Diseases (IBD), was organized.
- Monthly discussions involved healthcare professionals, patients, and community partners.
- Key themes of peer support and its role in managing IBD were explored.
Main Results:
- Peer support was identified as critically important for AYA with IBD.
- The need for more research and validation of peer support as an intervention was underscored.
- The value of collaborative, peer-led initiatives in reducing isolation was recognized.
Conclusions:
- Peer support is a vital component in improving outcomes for young adults with IBD.
- Further investigation and development of metrics are necessary to quantify the benefits of peer support.
- Multi-stakeholder collaboration is essential for effective peer support programs for young adults with IBD.
Abstract:
The "Roundtable on Young Adults with Inflammatory Bowel Diseases (IBD)" is a year-long learning community organized by the Crohn's and Colitis Young Adults Network with monthly discussions between healthcare professionals, patients, and community-based partners. The group aims to improve outcomes for the young adult IBD patient population. The roundtable discussion highlighted in this article centered on the critical importance of peer support for adolescents and young adults (AYA) with IBD. The discussion underscored the need for increased research in peer support, the need to further consider peer support as an intervention, and the value of multi-stakeholder, peer-led collaboration in reducing isolation for young adults with IBD. Additionally, the group identified areas of opportunity, such as developing more appropriate metrics and scales to prove the inherent value of peer support for young adults with IBD.
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