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Roundtable on Young Adults with IBD: A multi-stakeholder perspective and patient-driven analysis of the current
Sneha Dave1, Sydney Reed1, Kajal Patel2
1Generation Patient, USA.
Insights
The Roundtable on Young Adults with IBD enhances care by addressing challenges in transitioning pediatric to adult healthcare. Key issues include developmental milestones, disordered eating, and social determinants of health for young adults with IBD.
Area of Science:
- Gastroenterology
- Pediatric Healthcare
- Young Adult Health
Background:
- Inflammatory Bowel Disease (IBD) affects a significant young adult population.
- The transition from pediatric to adult-centered care presents unique challenges for young adults with IBD.
- Existing care models may not adequately address the specific needs of this demographic.
Purpose of the Study:
- To improve health outcomes for young adults with IBD.
- To identify and address critical issues during the pediatric to adult care transition for IBD patients.
- To foster a collaborative learning environment for providers, patients, and healthcare partners.
Main Methods:
- A year-long learning community involving monthly discussions.
- Engagement of healthcare providers, patients, and healthcare partners.
- Focus on the transition phase from pediatric to adult IBD care.
Main Results:
- Identified the need for developmental milestones specific to young adult IBD patients.
- Highlighted the importance of screening for disordered eating in this population.
- Emphasized the necessity of collaboration between pediatric and adult care providers and specialists.
- Recognized challenges including social media misinformation and social determinants of health.
- Acknowledged the potential lifelong psychosocial, mental, and economic burdens associated with IBD in young adults.
Conclusions:
- Improving care for young adults with IBD requires a multifaceted approach.
- Addressing the transition period is crucial for long-term patient outcomes.
- Integrated care models that consider psychosocial and socioeconomic factors are essential.
Abstract:
The "Roundtable on Young Adults with IBD" is a year-long learning community consisting of monthly discussions between providers, patients, and healthcare partners. The group aims to enhance outcomes for the young adult IBD patient population. The first discussion centered on the difficulties that IBD patients face during the transition from pediatric to adult care and how care can be improved for young adult patients during this phase. The group discussed the need to identify developmental milestones for young adult patients, further screening for disordered eating, and the importance of collaboration between specialists and pediatric and adult providers for a successful transition. Additionally, the group highlighted areas of concern such as the spread of misinformation through social media, social determinants of health, and the potential lifelong psychosocial, mental, and economic burdens of IBD for the young adult patient population.
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