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Adults with CHD and their quality of life: a single centre experience from Austria
Silvana M Brunner1, Raphael D Oberhuber1,2, Nathalie Heiligenbrunner1
1Heart Center Linz, Kepler University Hospital, Linz, Austria.
Insights
Adults with congenital heart disease (CHD) experience reduced quality of life, particularly those with severe symptoms. Ongoing psychological support is crucial for managing challenges and maintaining well-being in this growing population.
Area of Science:
- Cardiology
- Clinical Psychology
- Quality of Life Research
Background:
- Growing population of adult patients with congenital heart disease (CHD).
- CHD significantly impacts patient prognosis, performance, and psychosocial well-being, including anxiety and emotional disturbances.
- This study focuses on patients undergoing cardiac surgery and the psychological effects of complications.
Purpose of the Study:
- To analyze quality of life, psychosocial behavior, anxiety, and emotional disturbances in adult CHD patients post-surgery.
- To investigate the psychological effects of medical and psychosocial complications in CHD patients.
- To assess stress factors and limitations in quality of life among adult CHD patients.
Main Methods:
- Exploratory study design involving 80 adult CHD patients.
- Utilized a sociodemographic questionnaire and three standardized questionnaires.
- Assessed quality of life based on CHD symptom severity and compared with a healthy population.
Main Results:
- Quality of life in adult CHD patients is dependent on symptom severity.
- Individuals with lower symptom severity reported higher psychological well-being.
- Observed sex differences in physical role function and physical functioning.
Conclusions:
- Regular study repetitions are necessary to monitor evolving challenges in aging CHD patients.
- Continuous psychological and psychosocial support is essential for maintaining quality of life.
- Support is needed to help patients cope with difficult life circumstances.
Background:
The population of adult CHD patients is continuously increasing. The underlying CHD affects performance and prognosis, but also has a significant impact on quality of life, psychosocial behaviour, anxiety and emotional disturbances. This study analyzes these parameters of patients after one or more heart operations and the possible psychological effects of medical and psychosocial complications at the Department of Cardiology of the Kepler University Hospital Linz.
Methods And Results:
A total of 81 subjects participated in the questionnaire survey of the Institute of Cardiology and Clinical Psychology during their annual cardiological check-up. Of these, 80 participants were included in the study and three showed a mild CHD, 49 a moderate one, and 28 a severe one. This study has an exploratory design to assess possible stress factors and limitations in quality of life. For this purpose, a self-administered sociodemographic questionnaire and three standardised questionnaires were used. In summary, the quality of life of adult CHD is considered depending on the severity of the symptoms and compared with the healthy population. Differences in this regard are observed in individuals with lower symptom severity, who report higher psychological well-being. Sex differences are observed in physical role function and physical functioning.
Conclusion:
Based on the results, regular repetitions of the study, as well as continuous psychological and psychosocial support, are necessary, since challenges are predictable with the increasing age of adult CHD patients and since the upholding of good quality of life and dealing with difficult life circumstances must be supported.
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