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Implementing Findable, Accessible, Interoperable, Reusable (FAIR) Principles in Child and Adolescent Mental Health
Rowdy de Groot1,2, Frank van der Graaff3, Daniël van der Doelen4
1Department of Medical Informatics, Amsterdam University Medical Center, University of Amsterdam, Meibergdreef 9, Amsterdam, 1105 AZ, Netherlands, 31 648499049.
Implementing FAIR data principles in child and adolescent mental health research faces many barriers. Key recommendations include hiring data stewards, creating guides, and securing sustainable funding for FAIR data implementation.
Area of Science:
- Health Research
- Data Science
- Mental Health
Background:
- The FAIR data principles (Findable, Accessible, Interoperable, Reusable) aim to enhance data reusability.
- Implementing FAIR principles presents significant challenges due to various barriers.
Purpose of the Study:
- Systematically identify barriers to implementing FAIR principles in child and adolescent mental health research.
- Define the most challenging barriers and propose actionable recommendations.
Main Methods:
- Utilized data manager evaluations, expert interviews, and a rapid literature review to identify barriers.
- Categorized barriers by type, affected FAIR principle, origin, and specificity to mental health.
- Employed the Delphi method for barrier impact assessment and ranking.
Main Results:
- Identified 45 unique barriers, with 'external' type (e.g., organizational policy) and 'tooling' being most common.
- Barriers affected all FAIR principles, and most were not specific to mental health research.
- Consensus on barrier ranking was achieved, highlighting the need for data stewards, guides, and funding.
Conclusions:
- Systematic identification of barriers and recommendations can improve FAIR data implementation awareness.
- Researchers and funders must recognize the need for expertise, tooling, and investment for FAIR data.
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