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Related Experiment Video

Updated: May 8, 2025

Study of Experimental Organ Donation Models for Lung Transplantation

Study of Experimental Organ Donation Models for Lung Transplantation

Published on: March 15, 2024

Family concerns in organ donor conversations: a qualitative embedded multiple-case study.

Sanne P C van Oosterhout¹, Anneke G van der Niet¹, Wilson F Abdo²

¹Ethics of Healthcare Group, Department of IQ Health, Radboud University Medical Center, PO Box 9101, 6500 HB, Nijmegen, The Netherlands.

Critical Care (London, England)

|December 28, 2024

Summary

This summary is machine-generated.

Understanding family concerns during organ donation is crucial. Clinicians should actively listen and probe to better support families, especially when concerns are not clearly expressed.

Keywords:

Clinical ethics Communication Intensive care unit Organ donation Qualitative research

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Area of Science:

Medical Ethics
Grief Counseling
Healthcare Communication

Background:

Family concerns in organ and tissue donation are vital but under-researched in real-time.
Previous research has not captured the dynamic emergence and manifestation of these concerns during the donation process.

Purpose of the Study:

To explore family concerns in real-time during the organ donation process.
To understand how these concerns manifest during and after donor conversations.
To analyze clinician responses to family concerns during these conversations.

Main Methods:

Qualitative embedded multiple-case study across eight Dutch hospitals.
Thematic analysis of 29 audio-recorded donor conversations and 24 family interviews.
Direct observations of family-clinician interactions during the donation process.

Main Results:

Six main concern topics emerged: relative's death, dying well, donation fears, time perception, procedural clarity, and family involvement.
Concerns related to the life-event of death and dying well were most frequent.
Clinicians often provided information or solutions, but emotional or less articulated concerns received less attuned responses, leading to unresolved issues.

Conclusions:

Identified concerns and the distinction between clearly and less clearly articulated concerns can enhance clinician support.
Clinicians are advised to adopt a curious, probing approach to deepen dialogue.
Focusing on less clearly articulated concerns and identifying families' informational needs is recommended to improve support.