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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Cultivating participatory processes in self-harm app development: A case-study and working methodology.

Camilla M Babbage1,2, Joanna Lockwood1,2, Lily Roberts1,2

  • 1NIHR MindTech HealthTech Research Centre University of Nottingham Mental Health and Clinical Neurosciences Nottingham UK.

JCPP Advances
|December 30, 2024
PubMed
Summary

This study details the co-development of the CaTS-App, a digital tool for adolescent self-harm assessment. It emphasizes participatory design with young people to improve clinical support and shared decision-making in mental healthcare.

Keywords:
PPIcard‐sort task for self‐harmcoproductiondigital interventionsself‐harmyoung people

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Area of Science:

  • Digital mental health
  • Adolescent psychology
  • Participatory research

Background:

  • Rising rates of self-harm and suicide-related behaviors in young people highlight inadequate clinical support.
  • Codesign processes and shared decision-making are crucial for improving adolescent self-harm assessment and management.
  • The CaTS-App aims to foster collaborative understanding and support clinical decision-making for adolescent self-harm.

Purpose of the Study:

  • To describe the participatory development of the CaTS-App, a digital tool for adolescent self-harm.
  • To share processes for safe, engaging, ethical, and responsible co-creation of digital mental health tools.
  • To provide practical insights for genuine participatory approaches in digital mental health.

Main Methods:

  • Case study methodology focusing on participatory aspects of CaTS-App development.
  • Involvement of diverse young people aged 17-24 with lived experience of self-harm.
  • Co-production activities conducted over 48 months in face-to-face and online settings.

Main Results:

  • Detailed narrative, tabular, and diagrammatic examples of participatory processes and activities.
  • Discussion of the rationale behind methodological choices in co-development.
  • A summary methodology to encourage further development of participatory approaches.

Conclusions:

  • The paper offers valuable insights and practical details for implementing authentic participatory processes in digital mental health.
  • Effective co-development requires careful consideration when working with vulnerable young populations.
  • The CaTS-App's development exemplifies responsible and ethical participatory practice in digital mental health innovation.