Two-year follow-up of dementia caregivers after a digital health intervention WECARE: a mixed-method study

Few digital health interventions for dementia caregivers, especially for racial and ethnic minorities, include long-term follow-ups. This study assessed the feasibility of two-year follow-up of the Wellness Enhancement for Caregivers (WECARE) intervention for Chinese American dementia caregivers, examined the changes in psychosocial health and explored future strategies.

A mixed-method study was conducted two years after the initial WECARE intervention trial. Participants completed an online survey and phone interviews. Quantitative and qualitative data were analyzed complementarily.

Eighteen of 24 participants completed the survey and 15 participated in interviews. Caregivers reported deteriorating conditions of care-recipients and increased caregiving burden, but their depressive symptoms and life satisfaction remained lower compared to baseline. Participants highlighted sustained benefits of WECARE, including stress management, improved communication, and a sense of community through group chats. They expressed a need for ongoing social and information support.

This study demonstrates the feasibility of long-term evaluation for digital interventions like WECARE and emphasizes the need for continuous support. Sustained benefits underscore the potential of culturally tailored digital health interventions for underserved dementia caregivers. Future efforts should integrate ongoing resource access to enhance caregivers' long-term well-being.